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Genomics and public health [Recurso electrónico] : legal and socio-ethical perspectives / edited by Bartha Maria Knoppers.

Contributor(s): Knoppers, Bartha Maria [editor].
Material type: materialTypeLabelBook; Format: electronic Publisher: Leiden ; Boston : Martinus Nijhoff, c2007Description: 1 online resource.Content type: text Media type: computer Carrier type: online resourceISBN: 9047411714.Subject(s): Genetic screening -- Law and legislation | Genomics | Genomics -- Moral and ethical aspects | Public health | Genómica | Salud públicaGenre/Form: Electronic books.Online resources: Texto completo
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Manuales (7 días) 14. INTERNET
Recurso electrónico (Browse shelf) Available   Shelving location | Bibliomaps® BIBLIOG. RECOM.


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Acknowledgements; PART I POPULATION SCREENING: ISSUES, REALITIES AND POSSIBILITIES; A - Introduction: Expansion of Screening? --- J. Gerard LOEBER; B - Introduction: Newborn Screening: Storage and Access for Research? --- Ellen WRIGHT CLAYTON; PART II BALANCING INTERESTS IN PUBLIC HEALTH GENOMICS; Introduction: Of Genomics and Public Health: Building Public "Goods"? --- Bartha Maria KNOPPERS; Privacy Issues in Public Health Genomics --- Mark A. ROTHSTEIN; Balancing Private and Public Interests in Policy --- Darren SHICKLE

Public Opinion, Consent and Population Genetic Biobanks --- Timothy CAULFIELD, Nola M. RIESChallenges for Public Health Genomics - the Public Health Perspective on Genome-based Knowledge and Technologies --- Angela BRAND; PART III GENOMICS AND PUBLIC HEALTH: CURRENT APPROACHES AND FUTURE PERSPECTIVES; Introduction: The Role of International Stakeholders in Genomics and Public Health --- Andrea BOGGIO; From Genomic Research to Public Health Practice: International Policy Implications --- Stuart HOGARTH

GRaPH Int: An International Network for Public Health Genomics --- Alison STEWART, Mohamed KARMALI, Ron ZIMMERNThe Role of International Stakeholders Patients as Partners --- Alastair KENT; Genomics and Modes of Democratic Dialogue: An Analysis of Two Projects --- Hubert DOUCET, Marianne DION-LABRIE, Céline DURAND, Isabelle GANACHE; Meeting of Minds: A European Citizen's Deliberation on Emerging Technologies --- Marie-Hélène MOUNEYRAT; Developments in Genomics: Engaging Young People --- Caroline HURREN

Interdisciplinary Graduate Training in Public Health Genetics at the University of Washington --- Melissa A. AUSTIN

Acceso restringido a usuarios UCA

Policy development in the area of genetic risk factors needs to tackle such themes as: research and its application to public health and genomic medicine, the authority of the state, and the roles and responsibilities of citizens and the State. This book provides an insightful exploration of both research possibilities and the role of the state.


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